Advancing excellence in laboratory medicine for better healthcare worldwide

Task Force on Global Newborn Screening (TF-NBS)

Joint Task Force of IFCC and International Society of Newborn Screening (ISNS)

The Task Force NBS members during their inaugural meeting.
Prof Adeli, IFCC President participated into the meeting. Dr U. Ceglarek, not portrayed here, was in attendance as well.

Membership

NamePositionCountryTermTime in Office
V. Leung-PinedaCo-ChairUS1st2021 01 - 2023 12
J. BonhamCo-Chair/ISNSUK1st2021 01 - 2023 12
A.F. Al OthaimMemberSA1st2021 01 - 2023 12
M.A. Ascurra de DuarteMemberPY1st2021 01 - 2023 12
F. BoemerMemberBE1st2021 01 - 2023 12
U. CeglarekMemberDE1st2021 01 - 2023 12
A. Habib KhanMemberPK1st2021 01 - 2023 12
M. KaseMemberFI1st2021 01 - 2023 12
K. ValdyanathanMemberIN1st2021 01 - 2023 12
D. WebsterMember/ISNSAU1st2021 01 - 2023 12
E. LebredonchelMember/Young ScientistFR1st2021 01 - 2023 12


Scope & Mandate

●   Select countries for IFCC’s NBS Pilot Project via a call for participation to IFCC member societies using pre-defined selection criteria. A formal call for participation by developing countries will be issued soon by the IFCC office.
●   Identify potential participating centres (e.g. healthcare facilities and laboratories) and stakeholders (e.g. government ministries and/or agencies) within each Partner Country.
●   Engage with these centres in order to conduct situation assessment (i.e. information in regard to NBS-related diseases as well as resources/barriers in the Partner Country).
●   Identify ways in which the IFCC can provide lacking resources and support.
●   Develop a detailed protocol for an initial Pilot Project specific to each Partner Country. The proposal will be presented to the Partner Country via the respective IFCC member society. The Pilot Project implementation must be conditional on the Partner Country’s commitment to its continuation following IFCC’s initial financial support.
●   Implement the Pilot Project in participating centres in each Partner Country in collaboration with the IFCC member society and other stakeholders.
●   Monitor and evaluate the progress of the overall IFCC NBS Initiative, as well as the progress of specific Pilot Projects, through data collection and on-site/virtual visits by dispatching scientific teams to each Partner Country.
●   Plan for the expansion of the IFCC’s NBS Initiative, as well as the expansion of each NBS Pilot Project.


List of Corresponding Members, nominated by National Societies

NameFull and Affiliate Member Societies
M. I. AnghebemSociedade Brasileira de Analíses Clínicas (SBAC)
D. C. LehotayCanadian Society of Clinical Chemists (CSCC)
M. W. GebreEthiopian Medical Laboratory Association (EMLA)
N. AbesadzeLaboratory Medicine Association of Georgia (GLMA)
A. R. PagdhuneAssociation of Medical Biochemists of India (AMBI)
G. PoloItalian Society of Clinical Chemistry and Clinical Molecular Biology (SIBioC)
C. Bee ChinMalaysian Association of Clinical Biochemists (MACB)
B. Kumar YadavNepal Association for Medical Laboratory Science (NAMLS)
P. GyawaliNepalese Association for Clinical Chemistry (NACC)
J. I. AnetorAssociation of Clinical Chemists Nigeria (ACCN)
B. RepičSlovenian Association for Clinical Chemistry and Laboratory Medicine (SZKKLM)
T. M. SatekgeSouth African Association for Clinical Biochemistry and Laboratory Medicine (SAACB)
H. RochaSociedad Española de Medicina de Laboratorio (SEQCML)
E. SozmenTurkish Biochemical Society (TBS)
C. QueijoAsociación Bioquímica Uruguaya (ABU)


Chairs' contacts

Dr Van LEUNG-PINEDA
Department of Pathology and Laboratory
Children’s Healthcare of Atlanta 
1405 Clifton Rd - Atlanta, GA 30329 - US
e-mail: Van.PinedaWung@choa.org

Prof James R. BONHAM
International Society of Neonatal Screening (ISNS)
National Newborn Screening Laboratory Lead United Kingdom - UK
e-mail: j.bonham@nhs.net

 
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