Task Force on Global Newborn Screening (TF-NBS)

Joint Task Force of IFCC and International Society of Newborn Screening (ISNS)

The Task Force NBS members during their inaugural meeting.
Prof Adeli, IFCC President participated into the meeting. Dr U. Ceglarek, not portrayed here, was in attendance as well.

Membership

Scope & Mandate

●   Select countries for IFCC’s NBS Pilot Project via a call for participation to IFCC member societies using pre-defined selection criteria. A formal call for participation by developing countries will be issued soon by the IFCC office.
●   Identify potential participating centres (e.g. healthcare facilities and laboratories) and stakeholders (e.g. government ministries and/or agencies) within each Partner Country.
●   Engage with these centres in order to conduct situation assessment (i.e. information in regard to NBS-related diseases as well as resources/barriers in the Partner Country).
●   Identify ways in which the IFCC can provide lacking resources and support.
●   Develop a detailed protocol for an initial Pilot Project specific to each Partner Country. The proposal will be presented to the Partner Country via the respective IFCC member society. The Pilot Project implementation must be conditional on the Partner Country’s commitment to its continuation following IFCC’s initial financial support.
●   Implement the Pilot Project in participating centres in each Partner Country in collaboration with the IFCC member society and other stakeholders.
●   Monitor and evaluate the progress of the overall IFCC NBS Initiative, as well as the progress of specific Pilot Projects, through data collection and on-site/virtual visits by dispatching scientific teams to each Partner Country.
●   Plan for the expansion of the IFCC’s NBS Initiative, as well as the expansion of each NBS Pilot Project.